Mukati
Kuti chiziviso cha Down's syndrome kuongororwa zvakaitika panguva yekuzvitakura kana pakuzvarwa, vabereki vevana vane Down's syndrome vanowanzo tauramanzwiro akafanana ekusiiwa uye kuvhiringidzika pakuzivisa kwehurema. Mibvunzo mizhinji iri kufamba mumisoro yavo, kunyanya kana vasingazive nezve Down's syndrome, inonziwo Down chirwere : mwana wangu achaita degree rakadii rehurema? Chirwere chacho chinozviratidza sei zuva nezuva? Ndezvipi zvinokonzeresa pabudiriro, mutauro, kugarisana? Ndezvipi zvivakwa zvekutendeukira kuzobatsira mwana wangu? Ko Down's syndrome ine mhedzisiro pahutano hwemwana wangu?
Vana vanofanirwa kuteverwa nekutsigirwa zvakanyanya
Nepo vanhu vazhinji vane Down's syndrome vachiwana mwero wakati wekuzvimiririra mukukura, zvekusvika pakukwanisa kugara wega, mwana ane Down's syndrome anoda kutarisirwa kwakanyanya. kuva, gare gare, kuzvitonga sezvinobvira.
Padanho rekurapa, trisomy 21 inogona kukonzera congenital heart disease, kana kukanganisa kwemwoyo, pamwe nekusagadzikana kwekudya. Kana zvimwe zvirwere zvisingawanzo kuitika mu trisomy 21 (semuenzaniso: arterial hypertension, cerebrovascular disease, kana mamota akasimba), iyi chromosomal abnormality inowedzera njodzi yezvimwe zvirwere zvakadai se hypothyroidism, pfari kana kurara apnea syndrome.. Kuongororwa kwechiremba kwakakwana saka kunodiwa pakuberekwa, kutora mishonga, asiwo kakawanda munguva yehupenyu.
Nezve kukura kwehunyanzvi hwemotokari, mutauro uye kutaurirana, kutsigirwa nenyanzvi dzinoverengeka kunodiwawo, nekuti zvinokurudzira mwana uye kumubatsira kukura zvakanaka sezvazvinogona.
Psychomotor Therapist, physiotherapist kana speech Therapist inyanzvi zvekuti mwana ane Down's syndrome angangofanira kuona nguva nenguva kuti afambire mberi.
MaCAMSPs, ekutsigirwa kwevhiki nevhiki
Kwese kwese muFrance, kune zvimiro zvine hunyanzvi mukuchengeta vana vane makore 0 kusvika 6 vakaremara, vangave vari kunzwa, mota kana kushomeka kwepfungwa: CAMSPs, kana yekutanga medico-social chiito nzvimbo. Kune nzvimbo 337 dzerudzi urwu munyika, kusanganisira gumi nenhatu dziri mhiri kwemakungwa. MaCAMSP aya, anogaroiswa munzvimbo dzezvipatara kana mudzimba dzevana vadiki, anogona kuita mabasa akasiyana-siyana kana kuti nyanzvi mukutsigira vana vane hurema hwakafanana.
MaCAMSP anopa masevhisi anotevera:
- kutanga kuona kwekunzwa, motokari kana kukanganisa kwepfungwa;
- kurapwa uye kuvandudzwa kwevana vane manzwiro, motokari kana kukanganisa kwepfungwa;
- kuitwa kwemaitiro ekudzivirira akasarudzika;
- nhungamiro kumhuri dziri mukuchengeta uye dzidzo yakasarudzika inodiwa nemamiriro emwana panguva yekubvunzana, kana kumba.
Chiremba wevana, physiotherapist, murapi wekutaura, psychomotor therapist, vadzidzisi uye nyanzvi dzepfungwa ndiwo mabasa akasiyana anobatanidzwa muCAMPS. Chinangwa ndechekusimudzira kuenderana nemagariro nedzidzo yevana, zvisinei nekuremara kwavo. Nekuona kugona kwake, mwana anoteverwa mukati meCAMSP anogona kubatanidzwa muhurongwa hwechikoro, kana kireshi (kireshi, kireshi…) yekare nguva yakazara kana chikamu chenguva. Kana mwana atanga kuenda kuchikoro, panoitwa Personalized Schooling Project (PPS)., maererano nechikoro icho mwana angangoenda. For fambisa kubatanidzwa kwemwana muchikoro, mushandi anotsigira hupenyu hwechikoro (AVS) zvingadiwa kubatsira mwana muupenyu hwake hwezuva nezuva hwechikoro.
Vabereki vese vane mwana ari pasi pemakore matanhatu akaremara vane mukana wakananga kuCAMSPs, vasingade kuratidza hurema hwemwana, saka vanogona bata chimiro chiri pedyo navo zvakananga.
Kupindira kwose kunoitwa neCAMSPs kunovharwa neHealth Insurance. ZVIMWE ZVIKAMU zvinopihwa chikamu che80% nePrimary Health Insurance Fund, uye chikamu che20% neGeneral Council iyo yavanovimba nacho.
Imwe sarudzo yekutevera kwevhiki kwevhiki kwemwana ane Down's syndrome ndeye shandisai nyanzvi dzakasununguka, iyo dzimwe nguva inodhura sarudzo nekukasira kuvabereki, nekuda kwekushaikwa kwenzvimbo kana maCAMSPs ari pedyo. Usazeza kudaro kudana kumasangano akasiyana-siyana aripo akapoteredza trisomy 21, nekuti vanogona kuendesa vabereki kunyanzvi dzakasiyana mudunhu ravo.
Yakanyatso uye yakasarudzika yehupenyu hwese yekutarisa inopihwa neLejeune Institute
Kunze kwekutarisirwa kwevhiki nevhiki, kutarisirwa kwakazara nenyanzvi muDown's syndrome kunogona kuve nehungwaru, ongorora hurema hwemwana zvakanyatsojeka, kuti uwane ruzivo rwakadzama. MuFrance, Lejeune Institute ndiyo dhizaini huru inopa hutano hwakakwana kune vanhu vane Down's syndrome, uye izvi kubva pakuzvarwa kusvika pakuguma kwehupenyuBy boka rekurapa rakasiyana-siyana uye rakasarudzika, kubva kuna chiremba wevana kusvika kune geriatrician kuburikidza geneticist uye chiremba wevana. Kusangana-kutaurirana nenyanzvi dzakasiyana dzimwe nguva kunorongwa, kukwenenzvera kuongororwa zvakanyanya sezvinobvira.
Nekuti kana vanhu vese vane Down's syndrome vakagovana "yakawandisa yejini", imwe neimwe ine nzira yayo yekutsigira iyi genetic anomaly, uye kune kusiyana kukuru kwezviratidzo kubva kumunhu kuenda kumunhu.
« Kunze kwekutevera kurapwa kwenguva dzose, zvingave zvakakosha pane mamwe matanho ehupenyu kuve nekuongorora kwakakwana, kusanganisira kunyanya. mutauro uye psychometric zvikamu », Tinogona here kuverenga panzvimbo yeLejeune Institute. ” Idzi ongororo, dzinowanzoitwa mukubatana kwepedyo nemutauri, neuropsychologist uye chiremba, zvinogona kubatsira ziva maitiro anozokodzera zvakanyanya munhu ane hurema hwepfungwa panguva yematanho akakosha ehupenyu hwake. : kupinda mukireshi chikoro, sarudzo yechikoro, kupinda muhukuru, hunyanzvi hwekuita, sarudzo yenzvimbo yakakodzera yekugara, kuchembera ... ”Iyo pamwe neuropsychology naizvozvo akakodzera zvikurukuru kubetsera vabereki kuita chisarudzo chakarurama pamusoro pedzidzo yomwana wavo.
« Kubvunzana kwega kwega kunotora awa imwe chete, ye nhaurirano chaiyo nemhuri uye kupingudza varwere dzimwe nguva vanonetsekana zvikuru ", Anotsanangura Véronique Bourgninaud, mukuru wezvekutaurirana paLejeune Institute, achiwedzera kuti" ino ndiyo nguva inodiwa kuita chirwere chakanaka, kudzika kubvunzurudza uye kuongororwa kwekliniki, kuongorora zvinodiwa uye kuwana mhinduro dzakasimba dzekutarisira kwakanaka kwezuva nezuva. Mumwe mushandi wezvemagariro evanhu aripowo kuti atsigire vabereki vevana vane Down's syndrome mumatanho avo akasiyana. Kuna Véronique Bourgninaud, nzira yekurapa iyi inopindirana nenharaunda yekutevera neCAMSPs, uye kunyoresa kwehupenyu hwese, izvo zvinopa iyo Institute nyanzvi a ruzivo rwepasirese rwevanhu uye syndromes yavo : chiremba wevana anoziva kuti chii chinova chevana vaakatevera, chiremba wegeriatrician anoziva nyaya yose yemunhu waanotambira.
Iyo Jérôme Lejeune Institute yakazvimiririra, isiri-purofiti chimiro. Kune varwere, kubvunzana naizvozvo kunovharwa neHealth Insurance, semuchipatara.
Kwakabva uye rumwe ruzivo:
- http://annuaire.action-sociale.org/etablissements/jeunes-handicapes/centre-action-medico-sociale-precoce—c-a-m-s-p—190.html
- http://www.institutlejeune.org
- https://www.fondationlejeune.org/trisomie-21/