Chipupuriro: "Mwana wangu ane Down's syndrome"

Ndainge ndisina kumbova type ine mwana. Ndaiva werudzi rwevafambi.Neshungu dzezviitiko uye kusangana kwehungwaru, ndakanyora zvinyorwa nemabhuku, ndaidanana nguva nenguva, uye dumbu remucheche rakanga risiri chikamu chemamiriro angu ekunze. Kwete kuparadzanisa, kwete kuruka "areuh" uye kubuda nemhosva. Hapana mwana, ndapota! Ndakaita netsaona pamuviri pemuGiriki wandaida chaizvo asi akazodzokera kunyika yake nguva pfupi Eurydice azvarwa, akatisiya tisina chinhu kunze kwekunhuhwa kwefodya inotonhora. Haana kumboziva mwanasikana wake. Vasilis, mukomana mukuru uyu, hapana mubvunzo kuti akanga asingadi kufamba neni munzira yechokwadi. Nokuti Eurydice, paakazvarwa, akanga asina mapeya 23 emakromosome sesu, asi 23 mapeya nehafu. Muchokwadi, vanhu vane Down's syndrome vane imwe hafu-peya yemakromosomes. Ichi chikamu chidiki chekuwedzera chandinoda kutaura nezvacho, nekuti kwandiri chikamu chiri nani, zvakanyanya, zvakanyanya.

Mwanasikana wangu akatanga kusvitsa simba rake kwandiri, iro rakaita kuti acheme kubva mumwedzi mishoma yehupenyu, vachidaidzira kuti vatasve vachifamba-famba uye kubuda muguta. For kurara, ndaityaira. Ndichityaira ndakanyora mumusoro mangu. Ini ndaitya kuti Dice rangu, - naBuddha aive pakuzvarwa, muchimiro chayo chakaunganidzwa, zvakare akafukidzira zvipfeko zvemusikana mudiki zvandaimurongera -, zvaizotora kufemerwa kwangu kubva kwandiri, ndakaona izvo zvinopesana, nazvo, zvangu. pfungwa dzaipishana. Ndaitya ramangwana, ichokwadi, uye zuva apo hurukuro dzedu dzaizopera. Asi nekukurumidza zvikuru, ndaifanira kubvuma kuti chero zvakadaro, hazvina kutadzisa yangu kushanda. Zvaitoita kuti ashande zvakanaka. Zvakanyanya, zvakaperera. Ndaida kuratidza mwanasikana wangu zvinhu zvakawanda uye kumuendesa parwendo. Pasinei nezvemari yangu yakanga isina kumira zvakanaka, ndakanzwa kuti simba rakafanana rakanga riri madikanwa nokuda kwedu. Mukati meiyi nhambo, hatina kumborega kuzivana mumwe nomumwe, kunyange apo pane dzimwe nguva takashinga. Ndakashaya mari, kuchengeteka, dzimwe nguva taisangana nevanhu vatisingazivi, uye pashure pokunge ndatiza, ndakasarudza kudzokera kuCrete. Kure neni zano rekumutsidzira murazvo naVasilis uyo wandaiziva kuti akadzokororwa nemumwe, asi ndaida kuona kana kumwe rubatsiro rwenyama rwaigona kubva kumhuri yake. Nhamo, hanzvadzi yake naamai vake vaityawo naye vakatinzvenga sezvavaigona. Kana ari iye, akaramba kuyanana chero kupi zvako nemwana mudiki, achiramba nguva dzandakamupa pamhenderekedzo yegungwa kuti azvide, akareurura kwandiri, kufamba nembwa yake ... test. Chokwadi, kwaari zvaiita sezvisingamboitike kuti ave nemwana ane Down's syndrome. Mutongo uri mukati. Vasilis zvechokwadi vaiva baba vaEurydice, asi izvozvo hazvina kuchinja mafungiro ake. Zvisinei hazvo, ndakafara kuti ndakanga ndasvika apa, kuChania, Krete. Kwazvarirwa madzitateguru aDice, kwaaigara, mumatombo iwayo ekare nemhepo iyoyo. Vhiki mbiri dzokugara hadzina kumupa baba, asi dzakawedzera kusimbisa ukama hwedu. Manheru, paruzevha rwedu, taifarira kuti mwedzi urare tichifema hwema hwesadza netimu.

Aya anonhuwirira anodziya, ndakakurumidza kuakanganwa ndisati ndapinda mukireshi, Eurydice akatanga leukemia. Apo kurapwa kwokukatyamadza kwaifanira kutanga, baba vangu vakaronga kutiisa muchipatara muLos Angeles ndokunyoresa muduku wacho muinishuwarenzi yake youtano. Mwanasikana wangu akapfeka mavara aipenya akafukidzwa necatheter nemachubhu. Ndiri ndoga neni (baba vake vandakanga ndabvunza kana vaigona kuva mupi wemwongo anowirirana vakakurudzira kuti ndirege uye ndisaite chinhu kumuponesa), Dice akatsungirira marudzi ose ekurapa kwakaipisisa, noushingi. . Nekuda kwekuda kurasikirwa naye, ndaishandisa nguva pfupi yekuzorora kuti ndimhanyire panze ndichimupa chero chaigona kumuvaraidza. Ndakakurumidza kudzoka kumuviri wake muduku wairwadza, uye ndakateerera kune vanamukoti vachitaura kuti Eurydice aiva sei "pfuti yemufaro" wavo.Zvichida mararamiro aanoita iye zvino ndiwo anonyanya kukanganisa vanhu vakajaira kushuva zvakaitika kare kana kuti zvipikirwa zveramangwana. Eurydice, kune rumwe rutivi, akaona nguva, akafara. Kuda kwakanaka, kugona kwemufaro nekunzwira tsitsi, izvi ndizvo zvakapihwa mwanasikana wangu nazvo. Uye hapana muzivi, kunyange pakati peavo vandagara ndichiyemura, aigona kukwikwidzana naye munzvimbo iyi. Tose tiri vaviri takaita basa rokuvharirwa kwemwedzi minomwe muimba yechipatara iyi uye kutsungirira ruzha rwemichina. Ndakafunga kuti ndovaraidza sei mwanasikana wangu, ndichitamba chihwande neutachiona hwaaifanira kumbosiyana nazvo. Takagara pedyo nehwindo, taitaura nedenga, kumiti, kumotokari, kumatope. Takapunyuka mukamuri rino jena mufunge. Hwaiva humbowo hwekuti kufunga pamwe chete kwaisaita… Kusvikira zuva ratakazokwanisa kubuda, tichimhanyidzana munzvimbo yakanga isina vanhu yaiva pedyo nekuravira pasi neminwe yedu. Gomarara rakanga rapera kunyangwe rakanga rasara richitariswa.

Takadzokera kuParis. Kumhara kwakanga kusiri nyore. Patakasvika, mutarisiri wechivako chacho akandiwisira pasi. Achiona kuti pamakore maviri nehafu, Eurydice akanga asati ashanda, akandirayira kuti ndimuise muchikoro chenyanzvi. Pakarepo mushure mezvo, pandakanga ndichigadzira faira ndichida kuti hurema hwake huzivikanwe, ndakabirwa bhegi rangu. Ndakapererwa asi mavhiki mashoma gare gare, pandakanga ndisina kukwanisa kutumira iyi faira sezvo yakanga yabiwa kwandiri, ndakagamuchira kugamuchirwa. Saka mbavha yanga yandiisira file. Ndakatora chiratidzo ichi chekupedzisira sechipo. Eurydice wangu mudiki akamirira kusvika pazera re2 kuti afambe, uye iyo ye3 kundiudza kuti ndinokuda. Paakanga achangokuvara ruoko rwake uye ndave kumhanyira kunosunga bhandeji, akaregedza: I love you. Kuravira kwake kufamba uye kupengereka kwake kwekufamba dzimwe nguva kunotungamira kune zvinotyisa kana kutiza, asi ndinogara ndichimuwana pakupera kweaya mafugue anonakidza. Izvi ndizvo zvaanoda, zvakadzika pasi, kusangana kwedu?

Chikoro chakanga chiri imwe ketero yehove, sezvo kuwana nzvimbo “yakakwana” kwakanga kwakaoma.Mwana wangu akaremara akanga asina nzvimbo chero kupi zvako kutozosvikira, sezvineiwo, ndawana chikoro chakachigamuchira nestudio diki kusiri kure kwataigona kutambira varaini vedu vaviri. Zvino zvakanga zvakafanira kutarisana nerufu rwababa vangu uye ikoko zvakare, Eurydice akandiratidza nzira, achiteerera kuverenga kwandakamuitira "Pinocchio" bhuku iro baba vangu vaizoda kuva nenguva yekumuverengera. Pinocchio aida kuva mukomana mudiki sevamwe uye akazova akadaro pakupera kwehupenyu hwake, asi hupenyu hwake hunoudzwa ndehwemusiyano wake. Mwana wangu anewo nyaya yaaida kutaura. Yake yekuwedzera chromosome haina chayabvisa kubva kwatiri. Zvakandibvumira kufunga zviri nani, kuda zviri nani, kufamba nekukurumidza. Kutenda kwaari, ndine chokwadi cheizvi: "Luck ndiro ratinogadzira patinomira kumirira kuti pakupedzisira tinyemwerere, kana tasiya kutenda uku, tichisimbisa kusvika kumagumo. anesthesia, maererano nezvakanakisa zvichiri kuuya ”. “