Nyaya yaamai vemwana ane autism: "Kusika kwave kurapa kwangu"

Pazera romwedzi mumwe neminomwe, mwanakomana wangu Yakov akatanga kudzungudza musoro wake ndokuvhara nzeve dzake namaoko ake, sokunge akanga ari kuputika nokurwadziwa. Akatanga kumhanya achitenderera nemaoko ake, achifamba nezvigunwe zvake, achirovera madziro.

Akapotsa arasika kutaura. Aigara achigunun'una chimwe chinhu, orega kunongedza zvinhu. Uye akatanga kurumwa zvikuru. Panguva imwecheteyo, akaruma kwete avo vakamupoteredza chete, asiwo iye pachake.

Kwete kuti kare mwana wangu ndiye aiva mwana akadzikama panyika. Aiwa. Aigara achishingaira, asi pakanga pasina zviratidzo zviri pachena zvakadaro zvokuti chimwe chinhu chakanga chisina kumira zvakanaka paari kutozosvikira gore nehafu. Pagore nemasere, pane cheki yechiremba, haana kugara kwechipiri, aisakwanisa kuunganidza imwe mhando yeshongwe yemakubhi iyo mwana wezera rake anofanira kuvaka, uye akaruma mukoti zvakaipa.

Takapiwa magwaro ekuti tiende kunzvimbo inosimudzira vana. Ndakaramba kwenguva refu. Kusvikira vana chiremba wetsinga ataura zvinonzwika kuongororwa kwekupedzisira. Mwana wangu ane autism. Uye izvi zvakapihwa.

Pane chimwe chinhu chachinja munyika kubva ipapo here? Kwete. Vanhu vakaramba vachirarama hupenyu hwavo, hapana akatiteerera - kana chiso changu chakazara nemisodzi, kana kuna baba vangu vakavhiringidzika, kana mwanakomana wangu anomhanyira kune imwe nzvimbo, semazuva ose. Masvingo haana kukoromoka, dzimba dzakamira.

Ndakafunga kuti kwaiva kukanganisa. Zvakanaka, dzimwe nguva kuongororwa kwakashata. Chii chakaipa. "Vacharamba vachinyara kuti vakaongorora kuti mwana wangu ane autism," ndakafunga kudaro. Kubva panguva iyoyo ndakatanga rwendo rwangu rurefu rwekugamuchirwa.

Kutsvaga nzira yekubuda nayo

Kufanana nemubereki chero upi zvake ane mwana akaonekwa kuti ane autism, ndakapfuura nematanho mashanu ekugamuchirwa kwezvisingadzivisike: kuramba, kutsamwa, kutaurirana, kuora mwoyo, uye pakupedzisira kugamuchirwa. Asi ndakanga ndiri mukuora mwoyo kwandakaita kwenguva refu.

Pane imwe nguva, ndakamira kuedza kudzidzisazve mwana, ndichimhanyira kumakero e "zviedza" uye mamwe makirasi, ndakamira kutarisira kubva kumwanakomana wangu zvaaisagona kupa ... Uye kunyange mushure mezvo handina kubuda mugomba rakadzika-dzika. .

Ndakaona kuti mwana wangu aizosiyana nehupenyu hwake hwose, zvichida aisazozvimiririra uye aisazokwanisa kurarama hupenyu huzere kubva pakuona kwangu. Uye pfungwa idzi dzakatowedzera kuipa. Yashka akatora simba rangu rose repfungwa uye remuviri. Ndakaona pasina chikonzero chekurarama. Zvechii? Hapana chaunoshandura zvakadaro.

Ndakaona kuti ndakanga ndakaora mwoyo pandakazvibata ndichiita mubvunzo wekutsvaga: "nzira dzemazuva ano dzekuzviuraya." Ini ndanga ndichinetseka kuti vanogadzirisa sei zvibodzwa nehupenyu munguva yedu ...

Pane chachinja here munzvimbo ino nekuvandudzwa kwehunyanzvi hwepamusoro kana kwete? Zvichida pane imwe mhando yekushandisa yefoni inosarudza nzira yakanakisa yekuzviuraya zvichienderana nehunhu, maitiro, mhuri? Zvinofadza, handiti? Izvozvo zvakandinakidzawo. Uye zvakaita sendisiri ini. Aiita kunge asiri kubvunza nezvake. Ndakazongoona ndava kuverenga nezvekuzviuraya.

Apo ndakaudza shamwari yangu yendangariro Rita Gabay pamusoro paikoku, akabvunza, kuti: “Eya, chii chawasarudza, mutoo upi unokodzera iwe?” Uye mashoko iwayo akandidzosa panyika. Zvakava pachena kuti zvose zvandaiverenga zvaiva nechokuita neni neimwe nzira. Uye inguva yekukumbira rubatsiro.

Achava akasiyana kwehupenyu hwake hwose.

Zvichida danho rokutanga roku“muka” rakanga riri rokuti ndibvume kuti ndinorida. Ndinonyatso kuyeuka pfungwa yangu: “Handichakwanisi kuita izvi.” Ndinonzwa zvakaipa mumuviri wangu, zvakaipa muhupenyu hwangu, zvakaipa mumhuri yangu. Ndakaona kuti pane zvinoda kuchinja. Asi chii?

Kuziva kuti zviri kuitika kwandiri kunonzi kupera simba mupfungwa hazvina kuuya pakarepo. Ndinofunga kuti ndakatanga kunzwa nezvetemu iyi kubva kuna chiremba wemhuri yangu. Ndakauya kwaari nokuda kwemadonhwe mumhino kubva ku sinusitis, uye ndakasiya nemishonga inodzvinyirira. Chiremba vakangobvunza kuti ndaive ndaita sei. Uye mukupindura, ndakasvimha misodzi uye kwehafu yeawa handina kukwanisa kudzikama, ndichimuudza maitiro avo ...

Rubatsiro rwakabva kumativi maviri panguva imwe chete. Chekutanga, ndakatanga kutora mishonga yekurwisa kuora mwoyo sezvakarayirwa nachiremba, uye chechipiri, ndakanyorerana nachiremba wepfungwa. Pakupedzisira, zvose zvakashanda kwandiri. Asi kwete kamwe chete. Nguva inofanira kunge yapfuura. Inoporesa. Zvakapusa, asi ndezvechokwadi.

Iyo nguva yakawanda inopfuura, zviri nyore kuti unzwisise kuongororwa. Iwe unorega kutya izwi rekuti "autism", unomira kuchema pese paunoudza mumwe munhu kuti mwana wako ane chirwere ichi. Nokuti, zvakanaka, iwe unogona kuchema zvakadini nokuda kwechikonzero chimwe chete! Muviri unoda kuzvirapa wega.

Vanaamai vanonzwa izvi nechikonzero kana kuti pasina: "Unofanira kuzviwanira nguva iwe pachako." Kana kuti zviri nani: "Vana vanoda amai vanofara." Ndinovenga pavanodaro. Nokuti aya mazwi akajairika. Uye "nguva yako" yakapfava inobatsira kwenguva pfupi kana munhu akaora mwoyo. Chero zvazvingava, ndozvazvaiva zvakaita kwandiri.

Nhepfenyuro dzeTV kana kuti mafirimu zvinotsausa zvakanaka, asi hazvikubudisi mukuora mwoyo. Kuenda kumugadziri webvudzi chiitiko chikuru. Ipapo masimba anooneka kwemaawa akati kuti. Asi chii chinotevera? Kudzokera kumugadziri webvudzi?

Ndakaona kuti ndinofanira kutsvaga chigadziro chisingaperi, mhedzisiro yacho inogona kugara ichidyiswa. Ndakawana sosi yakadaro mukusika. Pakutanga ndakadhirowa nekuita zvemhizha, ndisati ndaziva kuti iyi ndiyo pfuma yangu. Akabva atanga kunyora.

Iye zvino kwandiri hapana kurapa kuri nani pane kunyora nyaya kana kuisa pabepa zviitiko zvese zvezuva, kana kutoburitsa chinyorwa paFacebook (sangano rinotyisa rakarambidzwa muRussia) nezvezvinondinetsa kana zvimwe nezve zvimwe. mamwe maitiro eYashkina. Mumashoko ndinoisa kutya kwangu, kusava nechokwadi, kusachengeteka, pamwe nerudo uye kuvimba.

Kusika ndiko kunozadza chishamiso chemukati, chinomuka kubva kune zviroto zvisina kuzadzikiswa uye zvinotarisirwa. Bhuku "Amai, AU. Mwana ane autism akatidzidzisa sei kufara" yakava kurapa kwakanakisisa kwandiri, kurapa nekusika.

"Tsvaga nzira dzako dzekufara"

Rita Gabay, chiremba wepfungwa

Kana mwana ane autism akaberekwa mumhuri, vabereki pakutanga havazivi kuti akakosha. Amai vanobvunza pamaforamu: "Mwana wako anorarawo zvisina kunaka husiku?" Uye anowana mhinduro: "Ehe, izvi zvakajairika, vacheche vanowanzomuka usiku." "Mwana wako anosarudzawo chikafu here?" "Hongu, vana vangu vanosarudzawo." "Yakowo haisanganisi maziso uye kusimuka paunoitora mumaoko ako here?" "Oops, aiwa, ndiwe chete, uye ichi chiratidzo chakaipa, kurumidza kutariswa."

Alarm mabhero anova mutsara unoparadzanisa, kunze kwekuti kusurukirwa kwevabereki vevana vanokosha kunotanga. Nekuti havagone kungobatana mukuyerera kwevamwe vabereki uye kuita sevamwe vese. Vabereki vevana vanokosha vanogara vachida kuita zvisarudzo - ndedzipi nzira dzekugadzirisa dzinoshandiswa, ndiani wekuvimba uye chekuramba. Huzhinji hweruzivo paInternet kazhinji hahubatsiri, asi hunongovhiringa.

Kugona kufunga wakazvimirira uye kufunga zvakadzama hakusi nguva dzose kunowanikwa kune vanozvidya mwoyo uye vakavhiringidzika vanaamai uye vanababa vevana vane matambudziko ekukura. Zvakanaka, ungatsoropodza sei vimbiso inoyedza yekurapa autism kana zuva rega rega neawa yega uchinamata kuti kuongororwa kunenge kuri kukanganisa?

Zvinosuruvarisa, vabereki vevana chaivo vanowanzoshaya munhu wekubvunza. Musoro wacho wakamanikana, kune nyanzvi shoma, kune vanyengeri vazhinji, uye zano revaberekiwo zvavo rinoratidza kusashanda zvachose kuvana vane autism uye rinongowedzera manzwiro ekusurukirwa uye kusanzwisisa. Kuramba mune izvi hakutsungiririki kumunhu wese, uye unofanirwa kutsvaga tsime rerutsigiro.

Pa Facebook (sangano rinotyisa rakarambidzwa muRussia), kune mapoka anokosha evabereki vevana vane autism, uye iwe unogonawo kuverenga mabhuku akanyorwa nevabereki vakanzwisisa ruzivo rwavo, rwakasiyana uye rwepasi rose panguva imwe chete. Universal - nokuti vana vose vane autism vanotungamirira vabereki vavo kuburikidza negehena, yakasiyana - nokuti hapana vana vaviri vane zviratidzo zvakafanana, pasinei nekuongororwa kwakafanana.

Mukuwedzera kune kusurukirwa kunowanikwa nevabereki chaivo, vanonzwawo mutoro mukuru uye kutya. Paunorera mwana ane neurotypical, anokupa mhinduro, uye unonzwisisa zvinoshanda nezvisingaite.

Usiku hwekusarara hwevabereki vevanawo zvavo hunobhadharwa nekunyemwerera kwevana uye kumbundirwa, imwe "Amai, ndinokuda" inokwana kuita kuti amai vanzwe semunhu anofara kwazvo munyika, kunyange kana sekondi isati yasvika. kumucheto kwekuora mwoyo kubva kune kuwandisa kwebasa uye kuneta.

Mwana ane autism anoda kunyanya kuziva mubereki kubva kuna baba naamai. Vazhinji vevabereki ava havazombonzwi "Amai, ndinokuda" kana kugamuchira kutsvoda kubva kumwana wavo, uye ivo vachatofanira kuwana dzimwe anchor uye mabhekoni etariro, zvimwe zviratidzo zvekufambira mberi, uye matanho akasiyana kwazvo ekubudirira. Vachawana nzira dzavo dzekupona, kupora uye kufara nevana vavo chaivo.