« Ndakaita nhumbu yangu yekutanga zvakanaka, kunze kwekurutsa kusingapere kusvika pamwedzi wechitanhatu wenhumbu.
Ndakaongorora zvese zvakajairwa (blood test, ultrasounds) uye ndakatomboitwa maultrasound mwedzi wega wega.
Ndakanga ndine makore makumi maviri nemaviri, uye mudiwa wangu ane makore makumi maviri nematanhatu, uye ndakanga ndiri kure kwazvo nekufungidzira zvese zvaizoitika… Asi zvakadaro panguva yangu yepamuviri, pane chinhu chimwe chete chaindityisa, chandakaita. ndaitya mukati-kati mangu pasina chikonzero chaicho tichifunga nezve “zvakajairika” bvunzo dzangu.
Musi wa15 July 2016, nenguva dza23:58 manheru, ndakasununguka mwanakomana wangu Gabriel mukiriniki yaiva pedyo nepamba pangu. Ini nemumwe wangu takanga tichifara, chishamiso chedu chakanga chakamirirwa kwenguva refu chakanga chasvika, mumaoko edu.
Mangwanani akatevera, zvinhu zvose zvakachinja.
Chiremba wevana vanosununguka akandiudza ndisina kana kumbotora magirovhosi, kana kumbogadziridzwa kuti ndimirire mumwe wangu kuti asvike: “Mwana wako zvechokwadi ane Down's syndrome. Tichaita karyotype kuti tive nechokwadi. Nekudaro anobva abuda mukireshi nekuti anofanira kuenda kunoona mwanasikana wake. Anondisiya ndakapererwa, ndega, ndapererwa nemashoko, ndichichema misodzi yose mumuviri wangu.
Mumusoro mangu, ndaizvibvunza: ndichazvizivisa sei kune mumwe wangu? Akanga ari munzira kuuya kuzotiona.
Sei isu? Sei mwanangu? ndiri mudiki ndine 22 chete hazvibviri ndiri pakati pekurota hope dzinotyisa ndichamuka chero miniti ndasvika panoperera tambo yangu ndinozviudza kuti hazvizobudiriri!
Zvinoita sei kuti vezvehutano havana chavakaona… Ndakatsamwira Nyika yose, ndakanga ndarasika zvachose.
Shamwari yangu yepamoyo inosvika kumaternity ward, ndakafara chaizvo. Ndiye akatanga kuziva nezvazvo: achindiona ndichichema, anonetseka uye anondibvunza kuti chii chiri kuitika. Handina kukwanisa kumirira kusvika kwababa: ndinomuudza nhau dzinotyisa, uye anondimbundira, asingatendiwo.
Baba vacho vanobva vangosvika, vanobva vatisiya tese. Zviripachena, anoita zvese zvese kuti asatsemuka pamberi pangu. Anonditsigira uye anondiudza kuti zvinhu zvose zvichanaka, anondisimbisa. Anobuda panze kuti achenese pfungwa dzake kwemaminetsi mashoma obva achemawo.
Ndakatadza kumirira, ndibudise mwana wangu mukiriniki iyi uye ndozoenda kumba, kuti titangezve hupenyu hwedu hutsva pamwe chete, uye kuyedza kuisa parutivi iyi nhanho yakaipa muhupenyu uye kunakidzwa nenguva dzakanaka nengirozi yedu diki.
Kwapera mavhiki matatu, mutongo wapera, Gabriel ane Down's syndrome. Takazvifungira, asi kuvhunduka kuchiripo. Ndakanga ndabvunza painternet nezve matanho aifanira kutorwa, nekuti vanachiremba vakatisiya tichipinda muzvisikwa vasina kutiudza chero chinhu ...
Multiple control ultrasounds: mwoyo, renal, fontanelles ...
Kuongororwa ropa kwakawanda zvakare, maitiro ane MDPH (imba yebazi revakaremara) uye Social Security.
Denga riri kuwira pamisoro yedu zvakare: Gabriel ane chirwere chemwoyo (izvi zvinokanganisa vanenge 40% yevanhu vane Down's syndrome), ane VIC yakakura (intra-ventricular communication), pamwe neCIA duku. (mu-nzeve kutaurirana). Pamwedzi mitatu nehafu, aifanira kuvhiyiwa mwoyo yakazaruka muNecker kuitira kuti azadze "makomba", kuitira kuti pakupedzisira awane uremu uye kufema zvakanaka pasina kunzwa sokuti akanga achimhanya marathon asina kumira. Sezvineiwo, kuvhiya kwacho kwakabudirira.
Saka midiki uye yatova nemiedzo yakawanda yekutarisana nayo! Mwanakomana wangu "murwi". Kuvhiya kwake kwakatibvumira kuti tiise zvinhu mugwara, taimutya zvikuru, tichitya kurasikirwa naye. Kuvavhiyi kuvhiyiwa kwemazuva ose, asi kwatiri vabereki vaduku, yakanga yakasiyana zvachose.
Nhasi, Gabrieri ane mwedzi 16, ari mwana anofara zvikuru uye anofara, anotizadza nomufaro. Upenyu hahusi nyore nguva dzose, hongu, pakati pevhiki nevhiki kugadzwa kwezvokurapa (physiotherapist, psychomotor therapist, mutauriri wekutaura, chiremba wevana, nezvimwewo) uye chokwadi chokuti anorwara nguva dzose (kudzokororwa kwebronchitis, bronchiolitis, pneumopathies) nekuda kwekuderera kwazvo. mwero wezvidziviriro zvemuviri.
Asi anotidzorera. Tinoziva kuti muupenyu, utano ndihwo hunonyanya kukosha mumhuri. Iwe unofanirwa kuziva nzira yekukoshesa zvaunazvo uye mafaro ari nyore muhupenyu. Mwanakomana wangu anotipa chidzidzo chikuru muhupenyu. Isu tichagara tichifanira kurwira zvese naye, kuitira kuti akure zvakanaka sezvinobvira, uye isu tinogara tichidaro, nekuti anofanirwa nazvo, semumwe mwana chero upi zvake. “
Méghane, amai vaGabriel