Mukati
Kurota kwevabereki nezvemwana akakwana dzimwe nguva kunoparara pavanoziva nezvehurema hwavo. Asi nhasi, zvisinei, hapana chinhu chisingakundiki. Uye zvino, pamberi perudo rwemwana, chero chinhu chinogoneka!
Kugara nemumwe mwana
Chero chero munhu mudiki achangozvarwa, uye chero hurema hwaangave nahwo, ndiwo moyo unotaura kupfuura zvese. Nokuti, pasinei nematambudziko ose, hatifaniri kukanganwa zvakakosha: mwana akaremara anoda kupfuura zvose, kuti akure mumamiriro ezvinhu akanakisisa, rudo rwevabereki vake.
Kunooneka kana kuti kusaoneka pakuberekwa, kwakapfava kana kuti kwakakomba, kuremara kwomwana chinetso chinorwadza nokuda kwemhuri, uye ikoku ndokwechokwadi zvikuru kana chiziviso chehosha chikaitwa kamwe kamwe.
Mwana akaremara, kunzwa kunotyisa kwekusaruramisira
Muzviitiko zvese, iyo vabereki ipapo vanokurirwa nokunzwa kwokusaruramisira nokusanzwisisa. Vanonzwa vaine mhosva pamusoro pokuremara kwemwana wavo uye vanoona zvakaoma kuzvigamuchira. Ndiko kuvhunduka. Vamwe vanoedza kukunda chirwere ichi nekutsvaga mhinduro yekukunda marwadzo, vamwe vanovanza kwemavhiki kana…
Dr Catherine Weil-Olivier, Mukuru weGeneral Pediatrics Dhipatimendi paLouis Mourier Hospital (Colombes), vanopupurira kuomerwa nekuzivisa hurema nekuchigamuchira nevabereki:
Amai vanotiudza zvirikuitika seizvi:
Kuputsa nekuzviparadzanisa nevamwe uye kurwadziwa kunogoneka nekuda kwe masangano mazhinji anopa rutsigiro kuvabereki uye anorwira kuti vazivikanwe nekuzivikanwa. Nemhaka yadzo, mhuri dzinorarama upenyu humwe chetehwo hwezuva nezuva dzinogona kugoverana funganyo dzadzo ndokubetserana. Usazeza kubata navo! Kusangana nedzimwe mhuri dziri kusangana nechinhu chimwe chete kunokubvumira kuputsa manzwiro aya ekusabatanidzwa, kuti urege kunzwa usingabatsiri, kuenzanisa mamiriro ako nedzimwe nyaya dzakakomba uye kuisa zvinhu mumaonero. Chero zvazvingava, kutaura.
Sezvinei
A "special consultation"
Vabereki vari kunetseka nezvekuva vatakuri ve "geni rakashata" vanogona kuenda kunoona nezvekurapa genetics. Vanogona zvakare kutaurwa, kana pakaitika nhoroondo yemhuri, nachiremba mukuru kana chiremba wezvekuzvara.
Medical genetics kubvunza inobatsira vakaroorana:
- kuongorora njodzi yavo yekuva nemwana akaremara;
- kuita sarudzo muchiitiko chenjodzi yakaratidza;
- kutsigira mwana wavo akaremara zuva nezuva.
Kuremara kwemwana zuva nezuva
Upenyu hwezuva nezuva dzimwe nguva hunochinja kuva chinetso chaichoicho kuvabereki, avo vachiri kugara vari voga kakawanda.
Uye zvakadaro, kune vabereki avo, pavanenge vachityaira kakomana kavo kuchikoro, vanogara vaine nyemwerero pachiso chavo. Iyi ndiyo nyaya yevabereki vaArthur, Down's Syndrome. Amai vemumwe wevadiki vavo vanoshamisika:
Imhaka yokuti vabereki vaArthur vanodada kuti vanokwanisa kuendesa mwana wavo kuchikoro sezvakaita vamwe vana vose, uye vakagamuchira hurema hwemwana wavo muduku.
Mudzimai muduku wechikamu chepakati chaArthur anotsanangura:
Nokudaro, kungofanana naye, mucheche wako angakwanisa kuenda kuchikoro, kana kuremara kwake kuchibvumira, uye kutevera dzidzo yenguva dzose negadziriro, kana kuri madikanwa, mukuwirirana nokutangwa kwacho. Kuchikoro kunogonawo kusarura. Izvi zvinoshanda kune mudiki ane Down's syndrome, sezvatichangobva kuona kana kumwana ari kutadza kuona kana kunzwa.
Mwana akaremara: basa rei kuhama nehanzvadzi?
Amai vaMargot, Anne Weisse vanotaura nezvemwanasikana wavo mudiki akanaka, akazvarwa aine cerebral hematoma uye angangove asingafambe asina mudziyo:
Kana muenzaniso uyu uchikurudzira, hazvishamisi kuti vana vomumba menyu vadzivirire mwana wavo akaremara, kana kutoidzivirira zvakanyanya. Uye chii chingava chakajairika? Asi chenjera, izvi hazvirevi kuti vakoma kana hanzvadzi vanonzwa varegeredzwa. Kana Pitchoun ichida kudzora kutarisisa uye nguva yaAmai kana Baba, zvinodikanwa zvakare kupa nguva dzakakosha kune vamwe vana vemhuri. Uye hapana chikonzero chekuvanzira chokwadi. Zvinonyanya kunaka kuti vanzwisise mamiriro acho nekukurumidza sezvinobvira. Imwe nzira yokuvaita kuti vagamuchire zviri nyore kuremara kwemunun’una wavo kana kuti hanzvadzi uye kusanyara nazvo.
Vape simba zvakare nekuvaratidza basa rekudzivirira ravanogona kuita, asi pamwero wavo, hongu, kuti usava mutoro unorema kwavari. Izvi ndizvo zvakaitwa naNadine Derudder:"Takasarudza, ini nemurume wangu, kuti titsanangure zvese kuna Axelle, hanzvadzi hombe, nekuti zvaive zvakakosha pakuenzanisa kwake. Iye musikana mudiki anoyevedza anonzwisisa zvese uye anowanzo kundipa zvidzidzo! Anonamata hanzvadzi yake, anotamba naye, asi anoita seakaora mwoyo kusamuona achifamba. Parizvino zvinhu zvese zviri kufamba zvakanaka, vari vaperekedzi uye vanoseka pamwe chete. Musiyano unopfumisa, kunyangwe zvakaoma kubvuma dzimwe nguva.
Funga kuchengetwa!
Hausi wega. Zvakawanda masangano akakosha anogona kugara mudiki wako uye kukubatsira. Funga semuenzaniso:
- of MAKAMPS (Early medico-social action centre) iyo inopa yemahara multidisciplinary care mu physiotherapy, psychomotor hunyanzvi, kutaura kurapa, nezvimwewo, zvakachengeterwa vana vane makore 0 kusvika 6 ekuzvarwa.
Ruzivo pa01 43 42 09 10;
- of SESSAD (Dzidzo Yakakosha uye Sevhisi Yekuchengeta Mumba), iyo inopa rubatsiro kumhuri uye rubatsiro nekubatanidzwa kwechikoro chevana kubva ku0 kusvika ku12-15 yemakore. Kune mazita eSESSADs: www.sante.gouv.fr
Mwana akaremara: kuchengetedza kubatana kwemhuri
Dr Aimé Ravel, chiremba wevana paJérôme Lejeune Institute (Paris), vanosimbirira panzira inofanira kutorwa inotenderwa nezwi rimwe chete: “Maitiro acho anosiyana kubva kumwana kuenda kumwana nekuti munhu wese anoshanduka zvakasiyana, asi munhu wese anobvumirana pane imwe pfungwa: Rutsigiro rwemhuri runofanira kutanga, kubva pakuzvarwa. "
Pava paya, pavanokura. vana vakaremara vanowanzoziva kusiyana kwavo kubva kare nokuti vanongozvienzanisa nevamwe. Somuenzaniso, vana vane Down’s syndrome vanogona kuona kubvira pazera remakore maviri kuti havakwanisi kuita zvinhu zvakafanana nevavanotamba navo. Uye vazhinji vanotambura nazvo. Asi ichi hachisi chikonzero chekubvisa mwana kubva kunze kwenyika, pane kudaro. Kuonana nevamwe vana kuchamubvumira kusanzwa ari kuparadzaniswa kana kuti ari oga, uye chikoro, sezvataona, chinobetsera zvikuru.
Prof. Alain Verloes, nyanzvi yezvemajini paRobert Debré Hospital (Paris), anozvipfupikisa zvakakwana uye anoronga mwana uyu mune ramangwana: “Zvisinei nekusiyana nekutambura kuri kuita mwana uyu, anogonawo kufara achinzwa rudo rwevabereki vake uye nekuona kuti, pave paya, ane chinzvimbo chake munharaunda. Iwe unofanirwa kubatsira mwana wako kuti azvigamuchire uye kuti anzwe achigamuchirwa uye achidiwa ”.
Usabvunze zvakawanda zveMwana
Muzviitiko zvese, hazvina kunaka kuda kunyanyira-kuchidzira Mwana zvachose kana kumubvunza zvinhu zvaasingagoni kuita. usakanganwe izvozvo mwana wese, kunyange "akajairika", ane miganhu yake.
Nadine anozvitsanangura zvirinani kupfuura chero ani zvake nekutaura nezvaClara mudiki wake, ane chirwere checerebral palsy, ane hupenyu hwaive hwakagadziriswa ne physiotherapy sessions, orthoptics ...: “Ndaimuda, asi ndaiona paari chirema chete, chakasimba kundidarika. Naizvozvo, zvishoma nezvishoma, murume wangu akapera simba ndokundisiya ndichipenga. Asi rimwe zuva, tichimbofamba-famba, akabata ruoko rwaClara ndokuruzunza kuti atambe. Uye ipapo, akatanga kuseka zvinonzwika !!! Zvaiita segetsi! Kekutanga kuona mwana wangu, kasikana kangu kachiseka uye handichaoni hurema hwake. Ndakati nechemumoyo: “Unoseka, uri mwana wangu, wakafanana nehanzvadzi yako, wakanaka kwazvo...” Ndakabva ndarega kumushungurudza kuti afambire mberi ndichibva ndatora nguva ndichitamba naye. , kumumbundira ... "
Verenga faira riri pamatoyi evana vakaremara
Unoda kutaura nezvazvo pakati pevabereki here? Kupa maonero ako, kuunza uchapupu hwako? Tinosangana pa https://forum.parents.fr.