Bev Axford-Hawx, makumi mana nematanhatu, anoshanda muchipatara uye anoti mazuva ake akaomarara agara akaoma, asi haana kumbozvikoshesa.
“Ndaimboshanda mundege, taifamba-famba zvakanyanya,” anodaro. - Kamwe chete makore akati wandei ndakaita kuongororwa kwekurapa kwakakwana, asi kwaigara kuchiitwa nevarume vezera. Vakangodzvokora meso avo ndokushaya kuti chii chainetsa pandiri.”
Mazuva aBev akareba, airwadza uye ainetsa aimunetesa uye aine simba guru pabasa rake, hupenyu hwepauzima uye kunyange kuzvivimba. Pose pandaiitisa kana kuti pandikaenda kupati kana kukokwa kumuchato, ndainyengetera kuti zuva racho risapindirana nokutevera kwangu kumwedzi.”
Bev paakazoenda kunyanzvi, vana chiremba vakati aizopora kana azvara vana. Zvechokwadi, pakutanga akanzwa kurerukirwa, asi zvakazonyanya kuipa kupfuura kare. Bev akanga ototya kutaura nachiremba uye akafunga kuti ichi chakanga chiri chikamu chinokosha chemukadzi.
Ob/gyn uye waanoshanda naye Bev Malcolm Dixon ari kuongorora zviratidzo zvake uye anotenda kuti ndemumwe wezviuru zvevakadzi vane zviratidzo zvinorwadza zvine chekuita nechirwere chevon Willebrand, icho chinokanganisa kugona kweropa kugwamba. Chinhu chikuru muchirwere ndechekushaya mapuroteni muropa, iyo inobatsira kuti iwedzere, kana kushanda kwayo kusina kunaka. Iyi haisi hemophilia, asi chirwere chakakomba chekubuda ropa umo imwe puroteni inoita basa guru.
Maererano naDixon, vanhu vanosvika 2% pasi rose vane genetic mutations inokonzera von Willebrand chirwere, asi vanhu vashoma vanoziva kuti vanayo. Uye kana varume vasina hanya nenyaya iyi nenzira ipi zvayo, ipapo vakadzi vachanzwa kusagadzikana panguva yekuenda kumwedzi uye kubereka. Chiremba anotaura kuti nguva yekurapa inowanzoshaikwa, nokuti vakadzi havaoni zvakakodzera kuisa pfungwa padambudziko ravo.
“Kana mukadzi asvika pakuyaruka, anoenda kuna chiremba, uyo anonyora mapiritsi ekudzivirira kubereka, ayo asinganyanyi kunyatso kudzora kubuda kweropa pachako kana kuine chokuita navon Willebrand,” anodaro Dixon. – Mapiritsi haakodzeri, mamwe anonyorerwa mukadzi, zvichingodaro. Vanoedza mishonga yakasiyana inobatsira kwenguva pfupi asi haigadzirise dambudziko racho zvachose.”
Mazuva anorwadza anorwadza, "mafashamo", kudiwa kwekugara uchishandura zvigadzirwa zvehutsanana kunyange usiku, dzimwe nguva kubuda ropa mumhino uye kukuvara kwakakomba mushure mekurohwa kuduku, uye kupora kwenguva refu mushure mekuita mazino uye tattoo ndiyo zviratidzo zvikuru izvo munhu ane von Willebrand.
“Dambudziko nderekuti vakadzi pavanobvunzwa kana kutevera kwavo kwakadzikama, vanoti hungu, nokuti vakadzi vose vomumhuri mavo vakamborwadziwa,” anodaro Dr. Charles Percy, chipangamazano wezvirwere zveropa pachipatara cheQueen Elizabeth Hospital muBirmingham. "Pane kusawirirana kwakawanda pamusoro pezvakajairwa, asi kana kubuda ropa kukaramba kuchipfuura mazuva mashanu kana matanhatu, zvine musoro kufunga von Willebrand."
MuUK, vakadzi vanosvika makumi matanhatu pagore vane hysterectomy (kubviswa kwechibereko). Zvisinei, izvi zvingadai zvakadziviswa nokutora matanho ekudzivirira pachine nguva.
"Dai takanga tichiziva zvakanyanya nezve von Willebrand kumashure, tingadai takadzivirira hysterectomy. Asi kunongofuratirwa sechirwere,” anodaro Dr. Percy.
Bev Axford-Hawks akasarudza kubvisa chibereko asati aziva nezve marapirwo angangoita dambudziko. Mazuva mana mushure mekuvhiyiwa, akazviwisira mukurwadziwa ndokutanga kubuda ropa mukati. Kumwe kuvhiya kwechimbichimbi kwaidiwa kubvisa kugwamba kukuru kweropa munzvimbo yepelvic. Akabva aita mazuva maviri ari muintensive care.
Mushure mekupora kwake, Bev akataura nemumwe wake Malcolm Dixon, uyo akabvuma kuti aive nezviratidzo zvese zvechirwere chevon Willebrand.
Dr. Percy anotaura kuti vamwe vakadzi vanobatsirwa ne<em>prenexamic acid, iyo inoderedza kubuda ropa, nepo vamwe vachipiwa desmopressin, iyo inowedzera mwero weprotein yeropa muhosha yaVon Willebrand.
Hupenyu hwaBev hwave nani kubva pakuvhiyiwa kwaakaitwa. Kunyange zvazvo matanho akasimba akadaro angadai akadziviswa, anofara kuti iye zvino ava kukwanisa kushanda uye kuronga mazororo murugare, asinganetseki nezvokutevera kwake. Beth anongonetseka nemwanasikana wake, uyo angadai akabatwa nehosha yacho, asi Beth akatsunga kuva nechokwadi chokuti musikana wacho haafaniri kutarisana nezvaaifanira kuita.
Zvimwe zvinokonzera nguva dzinorwadza
Mune zvimwe zviitiko, chikonzero hachigoni kuzivikanwa. Nekudaro, kune akati wandei mamiriro ekurapa anogona uye mamwe marapirwo anogona kukonzera kunorema kubuda kumwedzi. Izvi zvinosanganisira:
- Polycystic ovaries
- Zvirwere zvinoputika zvenhengo dzepelvic
- Adenomyosis
-Kusashanda kwethyroid gland
- Mapolyps emuromo wechibereko kana endometrium
– Intrauterine contraceptives