Mukati
Muscular dystrophies - Nzvimbo dzekufarira uye maonero echiremba wedu
Kuti udzidze zvakawanda nezve muscular dystrophiess, Passeportsanté.net inopa sarudzo yemasangano uye nzvimbo dzehurumende. Unozozviwana ipapo Zvimwe Information nekubata nharaunda kana mapoka ekutsigira ichikubvumidza iwe kuti udzidze zvakawanda nezve chirwere.
varipo
Furanzi
French Association inopesana neMyopathies (AFM)
Sangano rakagadzirwa muna 1958 nevarwere uye hama dzevarwere, nechinangwa chekurapa zvirwere zveuromuscular uye kuderedza hurema hweavo vakabatwa.
www.afm-telethon.fr
ORPHANET
Iyo isingawanzo chirwere portal
www.orphanet.Fr/
Kanadha
Muscular Dystrophy Canada
Sangano rine chinangwa chekusimudzira tsvakiridzo pazvirwere zveuromuscular uye kutsigira varwere nemhuri dzavo.
www.muscle.ca
nyika dzakabatana
Muscular Dystrophy Sangano
www.mdausa.org
Maonero achiremba
Sechikamu chemabatiro ayo emhando yepamusoro, Passeportsanté.net inokukoka iwe kuti uwane maonero eanachiremba. Dr Jacques Allard, mukuru wevashandi, anokupa maonero ake pane iyo tsandanyama dystrophy :
Zano rangu rinonyanya kuitirwa vabereki vane hanya nekukura kwemwana wavo. Kana mwana wako ane dambudziko rekufamba, kumhanya, kuburuka pasi kana kukwira masitepisi, achiita seasina kugadzikana kana kudonha kazhinji, zviri nani kuona chiremba, sezvo izvi zvinogona kuva zviratidzo zvekutanga zvemuscular dystrophy. . Kana uchinge waongororwa, mishonga uye kugadzirisa zvinogona kubatsira kuderedza zviratidzo uye kunonoka kufambira mberi kwechirwere. Pakupedzisira, ndinokurudzirawo kubvunza chiremba uyo ari nyanzvi mune genetics. Dr Jacques Allard MD FCMFC |