Pandakaziva nezvekuzvarwa kwemwanasikana wangu, ndakanwa whisky. Dzakange dzave 9 mangwanani uye kuvhunduka kwechiziviso chaive chakatarisana nenhamo yaMina, mukadzi wangu, hapana imwe mhinduro yandakawana kunze kwekubuda muwadhi yematernity. Ndakataura mazwi maviri kana matatu ehupenzi, “Usazvinetse, tichazvigadzirisa”, ndichibva ndamhanya kuenda kubhawa…
Ndakabva ndazvidhonza. Ndakanga ndine vanakomana vaviri, mudzimai aidiwa, uye kudikanwa kwokukurumidzira kwokuva baba vanokarirwa, uyo aizowana mhinduro ku“chinetso” chaYasmine muduku. Mwana wedu aiva neDown's syndrome. Mina akanga achangobva kundiudza, utsinye. Mashoko aya akanga ataurirwa kwaari maminetsi mashoma akanga apfuura navanachiremba, muchipatara ichi chevanaamai muCasablanca. Ngazvive zvakadaro, iye, ini nemhuri yedu yakabatana taizoziva kurera mwana uyu akasiyana.
Chinangwa chedu: kurera Yasmine sevana vese
Mukuona kwevamwe, Down syndrome irema, uye dzimwe nhengo dzemhuri yangu dzakatanga kusabvuma. Asi isu vashanu, taiziva kuita! Zvechokwadi, kuvanun’una vake vaviri, Yasmine akanga ari munun’una waaidiwa kubvira pakutanga, kuti adzivirire. Takasarudza kusavaudza nezvehurema hwake. Mina ainetseka kuti taizorera mwanasikana wedu somwana “achangoberekwa”. Uye akanga akarurama. Hatina kana chatakatsanangurirawo mwanasikana wedu. Kana dzimwe nguva, sezviri pachena, kuchinja kwechinyamusi kwake kana kuti utsinye hwake hwakamusiyanisa nevamwe vana, tagara tichida kumuita kuti atevere nzira yakajairika. Kumba taitamba tese, toenda kumarestaurant toenda kuzororo. Takadzivirirwa mukorokoni yemhuri yedu, hapana aizviisa mungozi yokumukuvadza kana kumutarisa nenzira yechienzi, uye taifarira kugara seizvi pakati pedu, nokunzwa kwokumudzivirira sezvazvaifanira. Trisomy yemwana inogona kukonzera mhuri dzakawanda kuputika, asi kwete yedu. Mukupesana, Yasmine anga ari guruu pakati pedu tose.
Yasmine akagamuchirwa mukireshi. Hunhu hwehuzivi hwedu hwaive hwekuti aive nemukana wakafanana nevakoma vake. Akatanga hupenyu hwake hwekushamwaridzana nenzira yakanakisisa. Aikwanisa, pamwero wake amene, kuunganidza zvidimbu zvokutanga zvepuzzle kana kuimba nziyo. Achibatsirwa nekurapa kwekutaura uye hunyanzvi hwe psychomotor, Yasmine aigara seshamwari dzake, achifambirana nekufambira mberi kwake. Akatanga kusvotesa vanin'ina vake, avo takapedzisira tavatsanangurira hurema hunomukanganisa, tisingataure. Saka vakaratidza moyo murefu. Mukupindura, Yasmine akaratidza kupindura zvakawanda. Down's syndrome haiiti kuti mwana asiyane, uye yedu nekukurumidza, semwana chero wezera rake, aiziva kutora nzvimbo yake kana kuiraira, uye kukudziridza hunhu hwayo uye chimiro chake chakanaka.
Inguva yekutanga kudzidza
Zvino, yaive nguva yekudzidza kuverenga, kunyora, kuverenga ... Zvivakwa zvehunyanzvi zvaive zvisina kukodzera Yasmine. Aitambura nekuve muboka revanhu "saiye" uye akanzwa kusagadzikana, saka takatsvaga chikoro chega chega "classic" chinoda kumugamuchira. Mina ndiye aimubatsira pamba kuti ave level. Zvakamutorera nguva yakareba kupfuura vamwe kuti adzidze, zviri pachena. Saka vose vakashanda kusvika pakati pehusiku. Kugadzirisa zvinhu kunoda basa rakawanda kumwana ane Down syndrome, asi mwanasikana wedu akakwanisa kuva mudzidzi akanaka muzvidzidzo zvake zvose zvepuraimari. Apa ndipo patakazonzwisisa kuti she was a competitor. Kutishamisa, kuva rudado rwedu, ndizvo zvinomukurudzira.
Kukoreji, ushamwari hwakawedzera kuoma zvishoma nezvishoma. Yasmine ave nebulimic. Hutsvina hwevayaruka, kuda kwake kuzadzisa buri rakanga richimuruma, zvose izvi zvakazviratidza maari sekusagadzikana kukuru. Shamwari dzake dzepachikoro chepuraimari, dzichiyeuka kuchinja kwaaiita zvinyamusi kana kuti chisimba, dzaimudzivisa, uye aitambura nazvo. Varombo vakaedza zvose, kunyange kutenga ushamwari hwavo nezviwitsi, pasina. Pavaive vasisamuseke vaimutiza. Zvakanyanya kuipa ndezvokuti paakasvitsa makore 17, paakakoka kirasi yose kuzuva rake rekuzvarwa uye vasikana vashomanana chete ndivo vakauya. Pashure penguva yakati, vakabuda kuti vambofamba-famba mutaundi, vachidzivisa Yasmine kuvakumbanira. Akafunga kuti "munhu weDown's syndrome anogara ega".
Takaita chikanganiso chekusatsanangura zvakakwana nezve musiyano wayo: zvichida angadai akanzwisisa zviri nani uye zviri nani kurarama nekuita kwevamwe. Musikana murombo akaora mwoyo nokusakwanisa kuseka nevana vezera rake. Kusuwa kwake kwakaguma kwave nemigumisiro yakaipa pamigumisiro yechikoro chake, uye takashamisika kana takanga tisina kuwedzeredza zvishoma - ndiko kuti, kubvunza zvakanyanya.
Uye bac, nerukudzo!
Takabva tatendeukira kuchokwadi. Pane kuti azvivhare oudza mwanasikana wedu kuti akanga “akasiyana,” Mina akamutsanangurira chinonzi Down syndrome. Pane kusamuvhundutsa, zvakazarurwa izvi zvakamutsa mibvunzo yakawanda kubva kwaari. Pakupedzisira akanzwisisa chikonzero nei akanzwa nenzira yakasiyana kudaro, uye akashuva kuziva zvakawanda. Ndiye akandidzidzisa shanduro ye“trisomy 21” muchiArabic.
Uye ipapo, Yasmine akazvikanda mumusoro mukugadzirira kwebaccalaureate yake. Takatsvaga vadzidzisi vega, uye Mina, nekuchenjera kukuru, akamuperekedza muongororo yake. Yasmine aida kusimudza chinangwa, uye akazviita: 12,39 avhareji, Zvakakwana kutaurwa. Ndiye mudzidzi wekutanga ane Down's syndrome muMorocco kuwana baccalaureate yake! Yakakurumidza kutenderera nyika, uye Yasmine akafarira mukurumbira uyu muduku. Paive nemhemberero yekumukorokotedza muCasablanca. Pamaikorofoni, aive akasununguka uye nemazvo. Ipapo, mambo akamukoka kuzokwazisa kubudirira kwake. Pamberi pake haana kufefetera. Takadada, asi taitofunga nezvehondo itsva, yezvidzidzo zveyunivhesiti. Chikoro cheGovernance and Economics muRabat chakabvuma kuipa mukana.
Nhasi, anorota kushanda, kuva "bhizinesi mukadzi". Mina akamugadza pedyo nechikoro chake uye akamudzidzisa kuchengeta bhajeti yake. Pakutanga, kusurukirwa kwaimuremera zvikuru, asi hatina kukanda mapfumo pasi uye akaramba ari muRabhat. Takazvikorokotedza pachedu nechisarudzo ichi, icho chakavamba mwoyo yedu. Nhasi mwanasikana wedu ari kuenda out, ane shamwari. Kunyangwe achiramba achiratidza hukasha kana achinzwa sezvisina kunaka kwaari, Yasmine anoziva kuratidza kubatana. Inotakura meseji izere netariro: zviri mumasvomhu chete kuti mutsauko ndeyekubvisa!