Mumwe mukadzi wekuAmerica ane chirwere chisingawanzo genetic aisakwanisa kubereka mwana uye akange asina kugadzirira kubvumirana nemamiriro acho ezvinhu. Mupatya wake akanga atobereka vana vaviri ndiye akazobatsira. Chii chaunoda kuitira munhu waunoda?
Amy Fuggiti ane makore 36 okuberekwa naCourtney Essenpreis magirazi ehanzvadzi mapatya anobva kuChicago, USA. Mapatya emhando iyi anoratidzirwa negirazi symmetry: semuenzaniso, mumwe wavo ane mole padama rake rekurudyi, uye imwe ine mole kuruboshwe rwake. Amy naCourtney vanotova nemazita ekutamba - "Righty" uye "Lefty".
Zvisinei, chirwere chisingawanzoitiki chemajini chakaendeswa kune maviri panguva imwe chete. Vakadzi vanorarama neAxenfeld-Rieger syndrome, iyo inokanganisa maziso, nzeve, uye central nerve system.
Pane mukana we50% wekuti chirwere ichi chipfuure kuvana, saka Amy naKourtney vaigona chete kubata pamuviri kuburikidza ne in vitro fertilization (IVF). Maitiro acho anoreva kuti nyanzvi murabhoritari tarisa mazai ese kuti ane chirwere uye anodyara chete ayo asina chero dambudziko.
"Kana ndichiti "Tine nhumbu", ndinoreva ini, murume wangu nehanzvadzi yangu"
Amy akaenda neIVF kana, asi akakundikana. Ma "embryos" haana kuongororwa majini kana kuti haana kuiswa muchibereko chemukadzi. “Vanachiremba vakashamiswa nenyaya yangu. Chibereko chaitaridzika zvakanaka, ma embryos akaongororwa chromosomal, uye hapana akanzwisisa chikonzero nei pasina chakabuda, ”akatsanangura. Mukadzi wacho akatoedza kubata pamuviri nerubatsiro rwemazai evanopa akagamuchirwa kubva kune hanzvadzi yake, uye kuedza uku hakuna kutungamirira pamuviri.
Makore matanhatu gare gare, Amy nemurume wake pakupedzisira vakagamuchira hutano hwakakwana - "goridhe" - "embryo", asi vaitya kuti kuedza kuisazve fetereza kwaizokundikana. Panguva iyoyo, hanzvadzi yake yakapindira, iyo yakabereka vana vaviri, uye nerubatsiro rweIVF. “Ndaisatombofanira kumukumbira kuti aite mumwe mukadzi. Zvaiita sekunge zvaifanira kudaro, ”akadaro Amy.
Somugumisiro, embryo yakasimwa muchibereko cheCourtney. “Pandinoti ‘Tava nepamuviri’ ndinoreva ini, murume wangu nehanzvadzi,” akadaro Amy. "Takazviita pamwe chete." Mwana anozvarwa muna Gumiguru 2021.