Sei vanachiremba vari nyanzvi dzepfungwa dzakaipa kudaro?

Mubetseri anoshuma kumukuru wedhipatimendi pamusoro pokugadzwa kwokupedzisira: “Ndakayera kurova kwetsinga, ndikatora ropa uye weti kuti zviongororwe,” anonyora pamuchina wacho. Uye purofesa anomubvunza: "Uye ruoko? Wakatora ruoko rwemurwere here? Iyi inyaya yaanofarira yemukuru wenyanzvi Martin Winkler, munyori webhuku rinonzi Sachs Disease, iro iye pachake akanzwa kubva kune ane mukurumbira French neurologist Jean Hamburger.

Nyaya dzakafanana dzinoitika muzvipatara zvakawanda nemakiriniki. “Vanachiremba vakawanda kwazvo vanobata varwere sokunge kuti vanhu vanodzidza chete, kwete vanhu,” anochema-chema kudaro Winkler.

Ndiko “kupenga” uku kwaDmitry ane makore 31 okukura anotaura nezvazvo paanotaura nezvetsaona yakakomba yaakapinda. Akabhururukira mberi nepahwindo, achityoka musana. “Ndakanga ndisisanzwi makumbo angu uye ndakanga ndisingazivi kana ndaigona kufamba zvakare,” anoyeuka kudaro. “Ndaida chaizvo chiremba wangu wokuvhiya kuti anditsigire.

Pane kudaro, zuva rakatevera kuvhiyiwa, akauya kukamuri rangu nevagari vake. Pasina kana kumboti mhoro, akasimudza gumbeze ndokuti: "Une paraplegia pamberi pako." Ndaingoda kushevedzera pachiso chake: "Zita rangu ndiDima, kwete "paraplegia"!", Asi ndakavhiringidzika, kunze kwekuti, ndakanga ndisina kupfeka zvachose, ndisingagoni kudzivirira.

Izvi zvingaitika sei? Winkler anonongedzera kugadziriro yedzidzo yeFrance: “Nzvero yokupinda muvadzidzisi hainzveri unhu hwomunhu, kukwanisa chete kuzvipira kushanda zvakakwana,” anotsanangura kudaro. “Vazhinji veavo vanosarudzwa vakazvipira zvikuru kupfungwa yokuti pamberi pomurwere vanowanzovanza kuseri kwounyanzvi hwokurapa kuitira kuti vadzivise kusangana kunowanzovhiringidza nevanhu. Saka, semuenzaniso, ita yunivhesiti mubatsiri mapurofesa, vanonzi barons: simba ravo mabhuku esainzi uye chinzvimbo chepamusoro. Vanopa vadzidzi muenzaniso wekubudirira. "

Mamiriro ezvinhu aya haana kugovaniswa naProfessor Simonetta Betti, Associate Purofesa weKukurukurirana uye Hukama muMishonga paYunivhesiti yeMilan: “Dzidzo itsva yeyunivhesiti muItaly inopa vanachiremba venguva yemberi maawa 80 ekukurukurirana uye makirasi ehukama. Pamusoro pezvo, kugona kutaurirana nevarwere ndeimwe yenzira dzakakosha mubvunzo dzehurumende dzehunyanzvi, inoverengera makumi matanhatu muzana emaki yekupedzisira.

"Isu, chizvarwa chechidiki, takasiyana," anodaro Purofesa Andrea Casasco, mwanakomana wevanachiremba, mubatsiri wepurofesa paYunivhesiti yePavia uye mutungamiriri weItaly Diagnostic Center muMilan. "Isina kureba uye yakachengetwa, isina mashiripiti, inoera aura yaimbotenderedza vanachiremba. Nekudaro, kunyanya nekuda kwehurongwa hwakasimba hwezvipatara nemakiriniki, vanhu vazhinji vanonyanya kufunga nezvematambudziko emuviri. Uyezve, pane «hot» unyanzvi - gynecology, pediatrics - uye «inotonhora» ndivo - kuvhiyiwa, radiology: radiologist, somuenzaniso, haatombosangana nevarwere.

Vamwe varwere vanonzwa sevasina chinhu kunze kwe "nyaya yekudzidzira", saLilia ane makore makumi mana nemasere, akavhiyiwa bundu muchipfuva chake makore maviri apfuura. Iyi ndiyo nzira yaanorangarira nayo manzwiro ake kubva pakushanya kumwe nokumwe kuna chiremba: “Nguva yokutanga chiremba akanzvera radiography yangu, ndakanga ndiri mukamuri rokusvikira. Uye pamberi peboka ravasingazivi, akadanidzira, kuti: “Hapana chakanaka!” Akataura nezvemuviri wangu sekutaura kunoita makanika nezvemota! Zvakanaka kuti vanamukoti vakandinyaradza.”

Ukama hwechiremba-murwere hunogonawo kupora

“Ukama hwachiremba nemurwere hunodzorwa nechitayera chokuremekedza chakavakirwa pakutenda kwoupofu,” anopfuurira kudaro Simonetta Betty. - Munguva yedu, ruremekedzo runofanira kuwanikwa nehunyanzvi hwesainzi uye nzira yekusvika kumurwere. Chiremba anofanira kukurudzira varwere kuti vave vanozvimirira mukurapa, kuvabatsira kugadzirisa chirwere, kugadzirisa zvirwere: iyi ndiyo nzira chete yekugadzirisa zvirwere zvisingaperi.

Nekukura kwezvirwere zvaunofanira kurarama nazvo, mushonga uri kuchinjawo, anodaro Andrea Casasco: “Nyanzvi havasisiri vaya vanokuona kamwe chete. Zvirwere zvepfupa uye zvinopera, chirwere cheshuga, matambudziko ekutenderera - zvose izvi zvinorapwa kwenguva yakareba, uye naizvozvo, zvakakosha kuvaka hukama. Ini, sachiremba uye mutungamiri, ndinosimbirira pakugadzwa kwenguva refu, nekuti kutarisisa mudziyo zvakare wekiriniki. "

Zvisinei, vanachiremba vari kuramba vachitarisana netarisiro yakanyanyisa yokuti zvinhu zvose zvinogona kugadziriswa uye kurapwa, anotsanangura Mario Ancona, chiremba wepfungwa, psychotherapist uye purezidhendi weAssociation for the Analysis of Relationship Dynamics, murongi wemisangano uye zvidzidzo zvevanachiremba vega muItaly yose. “Kare vanhu vaifarira kutsigira, uye zvino vanoti vari kurapa. Izvi zvinogadzira kushushikana, kushushikana, kusagutsikana mumunhu anopinda chiremba, kusvika pakuneta. Izvi zviri kurova varapi nevabatsiri vega mune oncology, intensive care uye madhipatimendi epfungwa.

Pane zvimwe zvikonzero: “Kune mumwe munhu akasarudza nzira yokubatsira vamwe, zvinonetesa zvikuru kupiwa mhaka nokuda kwezvikanganiso kana kuti kusakwanisa kuverenga simba ravo,” Ancona anotsanangura kudaro.

Somuenzaniso, anodudza nhau yeshamwari yavana chiremba somuenzaniso: “Ndakawana urema hwokukura mumwana mumwe ndokurayira kuti aongororwe. Mubetseri wangu, apo vabereki vemwana akashanya, akasundira shanyo yavo kwamazuva anoverengeka asina kundinyevera. Uye ivo, vaenda kune wandaishanda naye, vakauya kwandiri kuzokanda chirwere chitsva pachiso changu. Zvandakatoisa kare!”

Vanachiremba vaduku vangafara kukumbira betsero, asi kunaani? Ikoko hakuna rubatsiro rwepfungwa muzvipatara, itsika yekutaura nezvebasa muhutano hwehutano, munhu wose anotya kugamuchira marwadzo ose uye kutya kwevarwere kana vakashandura tsitsi zvishoma. Uye kugara uchisangana nerufu kunokonzera kutya kune chero munhu, kusanganisira vanachiremba.

Varwere vanoona zvakaoma kuzvidzivirira

“Kurwara, kushushikana nekutarisira mhedzisiro, zvese izvi zvinoita kuti varwere nemhuri dzavo vatambudzike. Shoko riri rose, zviito zvose zvachiremba zvinonzwika zvikuru,” Ancona anotsanangura kudaro, achiwedzera, kuti: “Kumunhu anorwara, hosha yacho yakasiyana. Munhu upi noupi anoshanyira munhu anorwara anoona kurwara kwake sechimwe chinhuwo zvacho, chakajairika. Uye izvi kudzoka kwezvakajairwa kumurwere zvingaite sekunge zvakachipa. ”

Veukama vanogona kunge vakasimba. Izvi ndizvo zvakataurwa naTatyana, 36, (baba vake vane makore 61 okukura vakaonekwa kuti vaiva nebundu muchiropa): “Vanachiremba pavakakumbira kuongororwa kakawanda, baba vairamba nguva dzose, nokuti zvose zvaiita soupenzi kwavari. . Vana chiremba vainge voshaya moyo murefu, amai vangu vainge vakanyarara. Ndakakumbira kumunhu wavo. Ndakarega pfungwa dzandaimbodzipwa dzichibuda. Kubva panguva iyoyo kusvika pakufa kwababa vangu, vaigara vachibvunza kuti ndiri sei. Humwe husiku, kapu yekofi murunyararo yaikwana kutaura zvese.

Murwere anofanira kunzwisisa zvese here?

Mutemo unosungira vanachiremba kupa ruzivo rwakakwana. Zvinotendwa kuti kana ruzivo rwehurwere hwavo uye zvese zvinobvira marapirwo zvikasavigwa kuvarwere, vanozokwanisa kurwisa chirwere chavo. Asi haasi murwere wese anokwanisa kunzwisisa zvese izvo mutemo unoraira kutsanangura.

Somuenzaniso, kana chiremba akati kune mukadzi ane ovarian cyst: "Zvinogona kunge zvisina kunaka, asi isu tichazvibvisa kana zvikaitika," izvi zvichava zvechokwadi, asi kwete zvose. Aifanira kudai akataura izvi: “Pane mikana mitatu kubva muzana yebundu. Tichaita ongororo kuti tione mamiriro eiyi cyst. Panguva imwecheteyo, kune ngozi yekukuvadza kumatumbo, aorta, pamwe chete nengozi yekusamuka mushure meanesthesia.

Ruzivo rwerudzi urwu, kunyange rwakanyatsotsanangurwa, runogona kusunda murwere kuramba kurapwa. Naizvozvo, chisungo chekuzivisa murwere chinofanira kuzadzikiswa, asi kwete nekusangwarira. Mukuwedzera, basa iri harina mhedziso: maererano neChibvumirano cheHuman Rights uye Biomedicine (Oviedo, 1997), murwere ane kodzero yekuramba ruzivo rwekuongorora, uye munyaya iyi hama dzinoziviswa.

4 Mazano eVanachiremba: Maitiro Ekuvaka Hukama

Zano kubva kunyanzvi yepfungwa Mario Ancona uye purofesa Simonetta Betty.

1. Mumuenzaniso mutsva wepfungwa uye unyanzvi, kurapa hazvirevi "kumanikidza", asi zvinoreva "kutaurirana", kunzwisisa zvinotarisirwa uye mafungiro euyo ari pamberi pako. Anotambura anokwanisa kuramba kurapwa. Chiremba anofanira kukwanisa kukunda kuramba uku.

2. Mushure mekusangana, chiremba anofanirwa kunyengetedza, kugadzira muvarwere kuvimba nemugumisiro uye kuzvigadzirisa, kuvakurudzira kuti vazvimirire uye vagadzirise zvakakwana kuchirwere. Izvi hazvina kufanana nemaitiro anowanzoitika mukuongororwa uye kurapwa kwakatemwa, apo murwere anotevera mirairo "nekuti chiremba anoziva zvaari kuita."

3. Zvakakosha kuti vanachiremba varege kudzidza mazano ekukurukurirana (somuenzaniso, kunyemwerera pabasa), asi kuti vawane kukura kwepfungwa, kunzwisisa kuti kushanyira chiremba musangano pamwe chete, izvo zvinopa manzwiro. Uye zvese zvinotariswa pakuita kuongororwa uye kusarudza kurapa.

4. Kazhinji varwere vanouya nemurwi wemashoko kubva kumapurogiramu eterevhizheni, magazini, Indaneti, izvo zvinongowedzera kuzvidya mwoyo. Vanachiremba vanofanira kunge vachiziva nezvekutya uku, izvo zvinogona kushandura murwere kune nyanzvi. Asi chinonyanya kukosha, usanyepedzera kuva ane masimba ose.